i just finished brain on fire.
everybody should read it. it sparked a lot of thought about things i already think about--how to fight against mental illness stigma, how to create greater empathy from the neuro-"typical" of us. how to understand better & reach out to include better & what are the best ways to communicate love to those who battle mental illness. i think this book could do some good in that direction.
but also.
damn.
i never had autoimmune encephalopathy i never hallucinated or experienced psychosis. i'm very grateful for this, and i wouldn't say that i have come close to experiencing what susannah did. it's incomparable.
but the first part of the book...shocked me with how releatable it was? the memories it stirred. i know what it's like to cave in, to lose pieces of your thought patterns and feel disconnected from your own neurons, to hide it for so long until you appear to flip personalities overnight but really you've fallen apart at the seems for a long time now. i just...yeah.
there's a lot of that to process.
and several people to thank. i thought was incredibly hard to love my whole life. (sure, mostly r/t abuse & for all the wrong reasons. i'm still difficult but for different reasons now lol) BUT what i didn't appreciate back then was that it could cause pain. that it probably hurt those i loved. the ones i let in were my closest, longest friends; i'm sorry they had to see me so devastated, broken, defeated, fragile. unable to sleep or eat or function as i used to. i believe i have communicated how grateful i am that they stood by me. but; i better understand with some distance just how that could have been. how mentally ill i was. & i don't think i can ever thank them enough. i jokingly refer to it as "that year i lost my mind" but truly, i did. it was a mental breakdown.
i haven't taken my healthy brain and functioning mind for granted ever since.
especially as there are still parts of me missing.
everybody should read it. it sparked a lot of thought about things i already think about--how to fight against mental illness stigma, how to create greater empathy from the neuro-"typical" of us. how to understand better & reach out to include better & what are the best ways to communicate love to those who battle mental illness. i think this book could do some good in that direction.
but also.
damn.
i never had autoimmune encephalopathy i never hallucinated or experienced psychosis. i'm very grateful for this, and i wouldn't say that i have come close to experiencing what susannah did. it's incomparable.
but the first part of the book...shocked me with how releatable it was? the memories it stirred. i know what it's like to cave in, to lose pieces of your thought patterns and feel disconnected from your own neurons, to hide it for so long until you appear to flip personalities overnight but really you've fallen apart at the seems for a long time now. i just...yeah.
there's a lot of that to process.
and several people to thank. i thought was incredibly hard to love my whole life. (sure, mostly r/t abuse & for all the wrong reasons. i'm still difficult but for different reasons now lol) BUT what i didn't appreciate back then was that it could cause pain. that it probably hurt those i loved. the ones i let in were my closest, longest friends; i'm sorry they had to see me so devastated, broken, defeated, fragile. unable to sleep or eat or function as i used to. i believe i have communicated how grateful i am that they stood by me. but; i better understand with some distance just how that could have been. how mentally ill i was. & i don't think i can ever thank them enough. i jokingly refer to it as "that year i lost my mind" but truly, i did. it was a mental breakdown.
i haven't taken my healthy brain and functioning mind for granted ever since.
especially as there are still parts of me missing.
Comments